The financial costs of caregiving.

Lori says :

I was so surprised by the cost of everything when I started caring for my mom. So much for thinking Medicare covers everything. I wish my mom had saved more money for herself but now we are in a situation where she has Medicare but also receives
Medicaid to help cover additional costs. I’ve had to pay for a few things here and there but that’s hard for me too.

Barbara says :

There is a growing gap in end-of-life custodial care for many seniors who have extremely limited financial resources and who do not have adequate family support at end-of life. While Medicare pays for medical Hospice in CA, and there may be a few Medi-CAL beds available in local skilled nursing facilities, more and more people are facing the trauma of dying alone under stressful and often painful circumstances.

A small group of people in Ventura County decided to do something to help, and in March of 2012, "Our Community House of Hope" (ourhouseofhope.org) began providing compassionate and loving end-of-life care at no charge to terminally ill people so they could live out their last days in peace, without fear and loneliness. The organization currently operates a 4-bed, residential care home in Thousand Oaks, CA, and will eventually be capable of serving an estimated 75 end-of-life residents annually. OCHH is funded 100% by community donations. Residents and their families do not pay for any services.

OCHH also offers ongoing educational programs on end-of-life care issues to the community, local university students and to health care professionals, in addition to building public awareness about end-of-life care alternatives that local communities can offer with compassion to those in genuine need.

Our Community House of Hope is a social-model that can be replicated in other California communities as well as across the nation in response to the end-of-life care-giving crisis. The near future goal of OCHH is to build a local free-standing, ten-bed end-of-life residential care home that will serve an estimated 180-200 terminally ill residents annually, with an education center that offers ongoing educational programs on end-of-life care issues.

FASHIONRB says :

I'm in Maryland having problems with the nursing home here because medicare does not pay for LTC, so I applied for medicaid for my mother it takes so long. I cannot pay the $5000 fee that they want, the lady in the fiance office is rude, I'm on disability my self, what to do. is their a grant I can apply for to help with these fees?